Jean-Michel (‘JM’) has Lou Gehrig’s disease (or ALS). 


It is the same degenerative disease as Stephen Hawking.


What is Lou Gehrig’s disease or ALS

  • Scientific name: Amyotrophic Lateral Sclerosis (ALS)
  • Neuro-degenerative disease.
  • It affects nerve cells in the brain and the spinal cord. It attacks ‘motor’ neurons and causes the atrophy  of ‘motor’ muscles and their paralysis.
  • It also causes paralysis of the muscles of the tongue, lips and throat, leading to difficulty in speaking and swallowing.
  • It causes breathing difficulties.
  • There is no treatment to date.

Who is JM?

  • JM is a French man from Martinique, aged 37 ans. 
  • Married to Valérie (33), father of Addisa (8) and Louise (4).
  • Before he developed the disease, he was an electrical technician. 
  • JM is cultivated, has a great sense of humor and he loves music, good food, parties, arts, sports, DIY and people.
  • He used to play the drums in a band.
  • JM commands admiration for his courage and positive attitude towards the disease.


How can you support JM?

This disease is evolutive: every day comes with a new challenge to tackle and the medical equipment is extremely expensive!


Last year, thanks to donations we were able to buy an eye-controlled computer, which allows JM to speak through a computer generated voice. The cost was over £14000! Without the donations it would have been impossible to finance this.

We need your help

You can make a donation on the website of the Association (non-profit charity)


All collected funds for this particular campaign will be used to finance JM’s eye-controlled computer


Funds are collected through Paypal.


Do not have a Paypal account? No problem!